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Rhizokds UK were sorry to hear of the passing last October of Charlotte "Lou Lou" West. Charlotte was the oldest living child in the UK with RCDP and passed at the age of 13 years. We would like to thank Charlottes family and friends for their donation to Rhizokids UK and hope that this donation will help others with the condition.

This now leaves only 2 families to our knowledge in the UK and although we don't want anyone else to go through this we know there must be others out there. Please if you read this get in touch we'd love to hear from you.

Conference News

Helping fund research for Rhizomelic Chondrodysplasia Punctata (RCDP)
“Special Children just looking for some hope”

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