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News


Following on from the success of sending all the Rhizokids around the world foam light toys and seeing the benefit the children got we are looking to fund temperature control sheets for all the children. This will hopefully prevent them from overheating and could save lives while we wait for research to come up with a treatment. These will be purchased with funds raised and will be sent out to all the families as soon as possible. Please contact us if you want to help to raise money to help these children, specialist equipment can be very expensive and the recession has affected many of our families around the world and the children need your help.


Rhizokds UK were sorry to hear of the passing last October (2009) of Charlotte "Lou Lou" West. Charlotte was the oldest living child in the UK with RCDP and passed at the age of 13 years. We would like to thank Charlottes family and friends for their donation to Rhizokids UK and hope that this donation will help others with the condition.

This now leaves only 2 families to our knowledge in the UK and although we don't want anyone else to go through this we know there must be others out there. Please if you read this get in touch we'd love to hear from you.

Support news

Thank you again to Polesworth Christian Fellowship for choosing to support Rhizokids again in 2010, we appreciate all the hard work you do with the fundraising.

A big thank you to Polesworth Christian Fellowship for all your fundraising efforts. A huge thank you to all those that took part in the walk and raised over £1000 this will be used to help children with RCDP.

Helping fund research for Rhizomelic Chondrodysplasia Punctata (RCDP)
“Special Children just looking for some hope”

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